On April 4, 2007, Maggie Jane was born and changed my life forever.  Maggie surprised us a couple days after her birth when we learned that she was born with a double inlet left ventricle, transposition of the greater arteries, and an interrupted aortic arch.  These 3 severe heart defects can all be classified under Hypo-Plastic Right Heart Syndrome.  She had her first life saving surgery, the Norwood (slightly modified) on April 10, 2007 and came home exactly a week later.  Her second heart surgery, The Glenn, was on Sept. 20, 2007 and she came home 4 days later.  Her third and hopefully final surgery, was August 20, 2009 and she came home 1 week later.  We have been tremendously blessed with how well Maggie has sailed through these surgeries.  With the exception of some severe reflux and some pleural efffusions following her Fontan, Maggie has thrived.  Now that her Fontan is complete, she is as pink as ever and except for her special scar, noone knows anything is wrong with our sweet girl.

Maggie Jane's personality is quite hard to explain.  I've been pondering it a lot lately as I sit back and enjoy watching her live.  The only way I can explain it is that she is full of life.  She enjoys every second of every minute of every day.  She takes what comes and she conquers it.  She doesn't let her 1/2 a heart stop her from doing anything.  Our family is so blessed to have Maggie in it and we have all been forever changed because of her. 

I will not tell you that every part of this journey has been easy.  In fact, most of it has been very difficult.  It is not what I ever expected my life to be.  However, I am now and forever will be a "Heart Mom" and we are a "Heart Family".  Maggie's heart problems will affect her the most, but they have changed and will continue to change us as a family.  Ryan is a "Heart Dad", I'm a "Heart Mom", and Trent and Evangeline are "Heart Siblings".  God has chosen Maggie and our family to tell His story of love, power, mercy, grace, and healing.  This is the life God has chosen for us so we are learning to be happy and content with life as it is. 

We are a family of 5, with Happy Hearts. 

(If you would like to read Maggie's story from the beginning, scroll down to the categories and select "Maggie Jane")

Advertisements